The ACT ME/Chronic Fatigue Syndrome Society is hosting a Free Public Seminar by Dr Byron Hyde of Nightingale Research Foundation, Ottawa, Canada.
Time: 1.30 pm on Saturday,4 September
Venue: Southern Cross Club,Woden
Information: T 6290 1984 E:[email protected]. (event is NOT rsvp)
Dr Hyde’s talk will cover the latest research into Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (M.E.), and Fibromyalgia. He will also be discussing diagnosis and treatment, understanding the complexities of these illnesses, and effects on children.
About Dr Byron Hyde and the Nightingale Research Foundation
Dr Hyde is one of the few physicians worldwide whose practice has consisted solely of the investigation of Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS)patients since 1984. Dr. Hyde collaborated with over 100 experts to edit and publish in 1992 the first comprehensive and authoritative medical reference book on M.E. and CFS.
In order to widen resources to investigate M.E., CFS and related illnesses, Dr Hyde founded the Nightingale Research Foundation in 1988. Nightingale is dedicated to explore, understand and treat patients disabled with M.E. and CFS, fibromyalgia-type illnesses and post-immunization injuries.
Any male, female, child or adult can have M.E. or CFS. Those who have M.E. or CFS usually get the illness between the ages of 12-55 and many children are included in the population of those with M.E. and CFS-like disease. Up to 70 per cent of people with M.E. or CFS are female. A disproportionate number of people with the condition are professionals and semiprofessionals in the teaching, medical and associated disciplines.
The Foundation chose the Tiger for its logo since the animal is a natural killer and “one of the first scientific benchmarks of M.E. and CFS was the fact that patients lacked active natural killer cells.” (NRF website) Natural killer (or NK) cells are an essential part of the immune system.
Today, Nightingale’s priorities are individual patient-based research with total body/brain investigation of M.E. and CFS patients as well as the development of a sophisticated database to consolidate these findings for analysis and publication.
The uniqueness of Dr Hyde’s work is in its emphasis on total body mapping of all systems and organs so that he can understand the nature and complexity of the M.E. and CFS patients’ illnesses. Dr Hyde also manages a detailed data base of information based on his investigations into acute onset and gradual onset central nervous system dysfunction associated with fatigue and pain syndrome. This is from individual M.E. and CFS case research of over 3,000 patients and is more detailed than any other such research in North America.
The Foundation also has a separate, longitudinal database with some records spanning over twenty years. Such resources have led to new findings about the illnesses and Dr Hyde believes the vast majority of gradual onset type CFS patients were misdiagnosed with many subsequently found to have other conditions.
About the ACT ME/CFS Society
The ACT ME/CFS Society is a volunteer, not for profit organisation which exists to give support and help to its members. It provides information about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS) to members, medical practitioners and the public and also promotes research. Its services include information, monthly Support Group meetings and Coffee Mornings, Telephone Information and Support Service, and Library.
The Society is coordinated by Volunteers and is a member of SHOUT (Self Help Organisations United Together) which is a secretariat and first point of contact for several member groups.
For more information visit the website on http://www.mecfscanberra.org.au or contact our Community Support Officer via SHOUT phone: 6290 1984.or email as above.
